FH Awareness Day

It feels a bit odd to be looking out the window and seeing fields of corn instead of acacia trees and sisal plants.   But it feels good to be back on American soil.  Sometimes when I'm gone from home awhile, I often come back and wonder why I ever left it in the first place.  But I suppose that's all part of the process.

Christian's banner hanging at the Genzyme headquarters
in Cambridge, Massachusetts.

It feels a bit odd, too, to not be writing much about Kenya.  I did this last time I got back from Kenya - for months now I've been conveying all of these stories and adventures about life on the other side of the world and now I sit down to a computer and think, "Well, now what am I supposed to write about?"  But there are adventures to be had and stories to be told here just as much as there are adventures to be had and stories to be told half-a-world away.

One of those stories belongs to my cousin, Christian.  (I actually should have written this post yesterday on the official FH Awareness Day, but I'm still operating on the Kenyans' approach to time - I'll get there when I get there.)  Christian has this rare disease that I can't even pronounce half the time (Familial Hypercholestrolemia - we'll just go with its initials FH for my sake), but he basically has insanely high cholestrol levels.  It's made him prone to heart disease and the like since he was a child. He had a scare awhile back when doctors discovered he had several parts of his heart over 70% blocked.  Since then, he's been partnering with the FH Foundation and a company called Genzyme to promote awareness about this crazy rare disease.  He's been traversing the country and the globe it seems, giving talks at places like Harvard, meeting other patients and speaking at conferences in England and cheering on runners in the Boston Marathon who were running in his honor.  He's become quite the little spokesman for this disease - because he's literally 1 in a million. I'm so proud of him and all of the work that he's doing. 

I'll take a break from my storytelling, to let him tell his own...